Browsing by UMass Chan Affiliation "Eunice Kennedy Shriver Center, Center for Developmental Disabilities Evaluation and Research"

Now showing items 1-2 of 2

    • A Structured Approach Using the Systematic Review Data Repository (SRDR): Building the Evidence for Oral Health Interventions in the Population With Intellectual and Developmental Disability
      Bonardi, Alexandra; Clifford, Christine J; Hadar, Nira (2017-04-01)
      BACKGROUND: This review describes the methods used for a systematic review of oral health intervention literature in a target population (people with intellectual and developmental disability (I/DD)), which spans a broad range of interventions and study types, conducted with specialized software. OBJECTIVE: The aim of this article is to demonstrate the review strategy, using the free, online systematic review data repository (SRDR) tool, for oral health interventions aimed at reducing disparities between people with I/DD and the general population. RESEARCH DESIGN: Researchers used online title/abstract review (Abstrackr) and data extraction (SRDR) tools to structure the literature review and data extraction. A practicing clinician and an expert methodologist completed the quality review for each study. The data extraction team reported on the experience of using and customizing the SRDR. RESULTS: Using the SRDR, the team developed four extraction templates for eight key questions and completed extraction on 125 articles. CONCLUSIONS: This report discusses the advantages and disadvantages of using an electronic tool, such as the SRDR, in completing a systematic review in an area of growing research. This review provides valuable insight for researchers who are considering the use of the SRDR.

    • Massachusetts Innovative Action to Support those Aging with an Intellectual or Developmental Disability (IDD)
      Bruner-Canhoto, Laney; Oxx, Sharon; Clifford, Christine J.; Lauer, Emily (2017-06-01)
      People with an Intellectual or Developmental Disability (IDD) may experience complex age-related issues, including dementia-related disorders, at earlier ages than the general population. To address changing needs, the Massachusetts Department of Developmental Services (DDS) formed a multidisciplinary workgroup of disability and aging-related public and private agency partners. The workgroup explored key areas of age-related needs, including end of life care and services; screenings for onset of age-associated changes and conditions; and innovative models and resources to support aging in community settings.