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    Date Issued2011 (1)2010 (1)Author
    Gruppuso, Philip (2)
    Lee, Mary M. (2)Bova, Carol A. (1)Bova, Carol Ann (1)Leung, Katherine (1)View MoreUMass Chan AffiliationDepartment of Pediatrics (2)Department of Cell Biology (1)Graduate School of Nursing (1)Document TypeJournal Article (2)Keyword*Social Support (2)Adult (2)Child (2)Child, Preschool (2)Diabetes Mellitus, Type 1 (2)View MoreJournalMCN. The American journal of maternal child nursing (1)The Diabetes educator (1)

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    Mentoring fathers of children newly diagnosed with T1DM

    Sullivan-Bolyai, Susan L.; Bova, Carol Ann; Lee, Mary M.; Gruppuso, Philip (2011-07-01)
    PURPOSE: To pilot test a social support intervention for fathers of children (T1DM). DESIGN AND METHODS: The pilot study was part of a larger randomized, controlled clinical trial. Father participants (28 fathers of children newly diagnosed) were recruited from two pediatric diabetes centers. For 12 months fathers (n = 19) and their spouses in the experimental arm received social support (home visits and phone calls). Control group fathers (n = 9) and their spouses received the phone number of an experienced parent (but not formally educated to provide social support) to call as needed. RESULTS: Fathers in the intervention group had significantly greater confidence but scored higher on worry at 12 months than control group fathers. Fathers in the two groups did not differ significantly in disease-related concerns or perceived disease impact on the family, nor did they differ significantly in perceived amount and helpfulness of their daily management. However, mothers overall perceived fathers as contributing more care and help than fathers perceived themselves (p > .10). Fathers in the experimental arm identified parent mentors as individuals they would seek advice regarding day-to-day management and community agencies. Over this 4.5 year study, 6 of 28 father participants and two of the three father mentors dropped out. CLINICAL IMPLICATIONS: Nurses caring for families with young children newly diagnosed with T1DM should consider fathers social support needs and encourage their participation in day-to-day management.
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    Social Support to Empower Parents (STEP): an intervention for parents of young children newly diagnosed with type 1 diabetes

    Sullivan-Bolyai, Susan; Bova, Carol A.; Leung, Katherine; Trudeau, Allison; Lee, Mary M.; Gruppuso, Philip (2010-01-18)
    PURPOSE: The purpose of this study was to test the efficacy of a social support intervention with parents of children <13 years old newly diagnosed with type 1 diabetes mellitus>(T1DM). METHODS: For this randomized, controlled clinical trial, 10 parent mentors of children diagnosed with T1DM >or=1 year and 60 parent participants were recruited from 2 pediatric diabetes centers. Mentors were trained to provide social support (home visits and phone calls) for 12 months to families in the experimental arm (32 mothers). Control group parents (28 mothers) received the phone number of an experienced parent (not trained to give social support) to call as needed. FINDINGS: Mothers in the experimental and control arms differed at baseline only in birth order of the child with T1DM. The 2 groups did not differ significantly at 3, 6, or 12 months in parent concern, confidence, worry, impact on the family, or perceived social support. Mothers in the experimental arm identified the parent mentor as someone they would seek for advice and issues regarding growth and development, sleep, eating habits, and identification of community agencies. Parent mentors consistently referred mothers to health care providers for advice on medications and treatments but helped them incorporate this advice into day-to-day management. CONCLUSION: Mothers in the experimental arm valued the mentors' help in adjusting to the diagnosis, but this value was not measured by the study instruments. Focus group research is under way to clarify the concept of parent mentor social support and to develop a social support measurement tool.
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