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    Date Issued2018 (1)2017 (1)Author
    Janopaul-Naylor, Elizabeth (2)
    Ostrowsky, Louis (2)Rubin, Emily (2)Baigell, Leah (1)Barnett, Greg (1)View MoreUMass Chan AffiliationDepartment of Family Medicine and Community Health (1)Department of Psychiatry (1)Eunice Kennedy Shriver Center (1)Document TypeJournal Article (1)Poster (1)KeywordPsychiatry and Psychology (2)child and adolescent mental health disorders (1)children (1)Civic and Community Engagement (1)Community Health (1)View MoreJournalAdolescent Psychiatry (1)

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    The Sibling Support Demonstration Project: A Pilot Study Assessing Feasibility, Preliminary Effectiveness, and Participant Satisfaction

    Rubin, Emily; Ostrowsky, Louis; Janopaul-Naylor, Elizabeth; Sehgal, Priya; Cama, Shireen; Tanski, Emilie; Curtin, Carol (2018-04-01)
    Background: The hospitalization of a child on an inpatient psychiatric unit is traumatic for the entire family, but few services address the needs of their siblings and caregivers. Objective: This pilot study aimed to demonstrate the feasibility and potential benefits of implementing psycho-educational and support groups for caregivers and siblings of children and adolescents admitted to psychiatric units. The primary aim of this intervention was to increase sibling resiliency and reduce trauma experienced by families. Method: A total of 145 siblings and 196 caregivers participated in the intervention. Siblings participated in a structured support group that enabled them to share their stories and learn coping skills. Caregivers were provided with a psycho-education curriculum in a group facilitated by a parent mentor. At the end of each session, participants completed surveys which included questions on demographics, satisfaction, knowledge learned, and anticipated changes in behavior as the result of participating in the intervention. Results: Feasibility was demonstrated through successful recruitment, high rates of survey completion, and overall participant satisfaction. Caregivers reported gaining useful parenting strategies to better support the siblings, an increased understanding of the impact of mental illness on siblings, a reduction in feelings of isolation, and improved access to resources. Siblings reported feeling relieved and better understood, learning new coping skills, and finding validation and support through sharing their experiences in a group setting. Conclusion: This study supports the feasibility and importance of providing sibling and caregiver support and psycho-education to enhance resiliency and reduce trauma among family members of psychiatrically hospitalized children and adolescents.
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    Sibling Support Program: A Family-Centered Mental Health Initiative

    Rubin, Emily; Baigell, Leah; Lauer, Emily; Ostrowsky, Louis; Janopaul-Naylor, Elizabeth; Barnett, Greg; Mackenzie, James; Patel, Nikhil; Kotlar, Yana; Pressman, Adele; et al. (2017-03-03)
    Sibling Support Program: A Family-Centered Mental Health Initiative was developed at the Eunice Kennedy Shriver Center of the University of Massachusetts Medical School. The project is currently implemented at Cambridge Health Alliance in Cambridge, Massachusetts as an IRB-approved research study, and at another Boston-based hospital as a Quality Improvement (QI) initiative. The program was also piloted at Boston Children's Hospital in Boston, Massachusetts. The project explores the impact of mental illness on typically developing siblings and caregivers of children with psychiatric needs. Project goals: to increase resiliency and mitigate the trauma commonly experienced by siblings of children admitted for psychiatric hospitalization; to build skills, competency and confidence among parents; to help restore family stability post-discharge; to build capacity among medical practitioners. Interventions include psycho-educational groups for caregivers, and sibling support groups for children growing up alongside the patient. Participants complete surveys following the intervention to report on knowledge learned, satisfaction level, and behavioral change anticipated by the participant. Over 1,500 participants have participated in this innovative program that utilizes parent mentors and medical trainees to deliver interventions, with high satisfaction scores among participants. Results suggest that a child's mental illness can be traumatic for family members, and that sharing stories can alleviate the stress and anxiety related to living in a home with a child with mental illness. The program serves as a training rotation for psychiatry residents through Harvard Medical School.
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