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Patient-reported outcome measures in arthroplasty registries

Rolfson, Ola
Eresian Chenok, Kate
Bohm, Eric
Lubbeke, Anne
Denissen, Geke
Dunn, Jennifer
Lyman, Stephen
Franklin, Patricia D
Dunbar, Michael
Overgaard, Soren
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Abstract

The International Society of Arthroplasty Registries (ISAR) Steering Committee established the Patient-Reported Outcome Measures (PROMs) Working Group to convene, evaluate, and advise on best practices in the selection, administration, and interpretation of PROMs and to support the adoption and use of PROMs for hip and knee arthroplasty in registries worldwide. The 2 main types of PROMs include generic (general health) PROMs, which provide a measure of general health for any health state, and specific PROMs, which focus on specific symptoms, diseases, organs, body regions, or body functions. The establishment of a PROM instrument requires the fulfillment of methodological standards and rigorous testing to ensure that it is valid, reliable, responsive, and acceptable to the intended population. A survey of the 41 ISAR member registries showed that 8 registries administered a PROMs program that covered all elective hip or knee arthroplasty patients and 6 registries collected PROMs for sample populations; 1 other registry had planned but had not started collection of PROMs. The most common generic instruments used were the EuroQol 5 dimension health outcome survey (EQ-5D) and the Short Form 12 health survey (SF-12) or the similar Veterans RAND 12-item health survey (VR-12). The most common specific PROMs were the Hip disability and Osteoarthritis Outcome Score (HOOS), the Knee injury and Osteoarthritis Outcome Score (KOOS), the Oxford Hip Score (OHS), the Oxford Knee Score (OKS), the Western Ontario and McMaster Universities Arthritis Index (WOMAC), and the University of California at Los Angeles Activity Score (UCLA).

Source

Acta Orthop. 2016 Jul;87 Suppl 1:3-8. doi: 10.1080/17453674.2016.1181815. Epub 2016 May 11. Link to article on publisher's site.

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DOI
10.1080/17453674.2016.1181815
PubMed ID
27168175
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Copyright © 2016 The Author(s). Published by Taylor and Francis on behalf of the Nordic Orthopedic Federation.