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Investigating demographic differences in patients' decisions to consent to COVID-19 research

Robertson, Kelly
Reimold, Kimberly
Moormann, Ann M
Binder, Raquel
Matteson, Kristen A
Leftwich, Heidi K
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Abstract

One hundred and fifty-eight pregnant patients with SARS-CoV-2 infection were approached for CARES study participation. Eighty-nine patients consented to study participation, while 69 declined study participation. A retrospective chart review was conducted on all 158 patients. Patients who identified as Black race or non-White race were more likely to decline participation (23.2%, p = .031, 68.1%, p = .026), compared to patients who identified as White (31.9%) (Table 1). Patients with public insurance were also more likely to decline study participation (72.5%, p = .049) compared to those with private insurance (27.5%). There was no significant difference between primary language spoken or ethnicity in patients who participated or declined. There was no difference in study participation between patients who identified as Asian race or Other race, compared to patients who identified as White race.

Source

Robertson K, Reimold K, Moormann AM, Binder R, Matteson KA, Leftwich HK. Investigating demographic differences in patients' decisions to consent to COVID-19 research. J Matern Fetal Neonatal Med. 2023 Dec;36(1):2148097. doi: 10.1080/14767058.2022.2148097. PMID: 36597819.

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DOI
10.1080/14767058.2022.2148097
PubMed ID
36597819
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© 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.; Attribution-NonCommercial-NoDerivatives 4.0 International