• Journal of eScience Librarianship (JeSLIB) Publishing Process

      Raboin, Regina Fisher (eScholarship@UMassChan, 2022-08-02)
      Describes the roles and responsibilities, author guidelines, and peer review process for the Journal of eScience Librarianship.
    • Data and Code from "Show me the data! Data sharing practices demonstrated in published research at the University of Massachusetts Chan Medical School"

      Grynoch, Tess (2022-07-11)
      Data extracted from articles published by UMass Chan researchers to determine where and how data was being shared. Code from the analysis is also included.
    • Interested in Peer Reviewing? Let’s Talk

      Raboin, Regina Fisher (2022-06-15)
      What does good peer review mean in the context of scholarly publishing? How can I be an effective peer reviewer? If I’ve never done it before, where would I start? Regina Raboin, Editor-In-Chief of the Journal of eScience Librarianship, will de-mystify peer review and answer your questions about this important process. In this presentation, both new and experienced peer reviewers can learn how to sharpen their skills and contribute to excellent scholarly communication. This webinar was sponsored by the RDAP Association Education and Resources Committee.
    • Top trends in academic libraries: A review of the trends and issues

      2021–22 ACRL Research Planning and Review Committee; McAllister, Alex; Flierl, Michael; Caswell, Thomas R.; Costello, Laura; Hall, Anita; Li, Cindy; Maher, Monica; Piorun, Mary E.; Prud’homme, Patrice-Andre; et al. (2022-06-03)
      This article summarizes trending topics in academic librarianship from the past two years–a time of tremendous upheaval and change, including a global pandemic, difficult reflections concerning racial justice, and war between nation states. Rapid changes and uncertainty from these events have created a significant amount of shifts to academic libraries, higher education, and society in general. Such shifts have yielded new perspectives and innovations in how librarians approach delivering services, supporting student success, managing staff and physical spaces, embracing new technology, and managing data. This report attempts to provide a snapshot of developments worth noting.
    • LGBTQ+ Health Research Guides: A Cross-institutional Pilot Study of Usage Patterns

      Stevens, Gregg A.; Fajardo, Francisco J.; Morris, Martin; Berry, Jessica; Parker, Robin M. N.; McLean, Katie D. (2022-05-06)
      Objectives: Multiple authors have recommended that health sciences libraries use research guides to promote LGBTQ+ health information, connect with their users and the community, and improve health equity. However, little is known about LGBTQ+ health guide usage patterns and whether such guides really meet the information needs of their users. Based on usage patterns from LGBTQ+ health research guides, we assessed the types of LGBTQ+ health information of greatest interest to health sciences library users and how, if appropriate, these guides might be revised to be more relevant to user needs. Methods: The data for LGBTQ+ health research guides of five health sciences libraries (three in the United States and two in Canada) were studied. Usage data were retrieved for a three year period (July 2018-June 2021). Two separate factors were chosen for analysis: monthly guide usage over time and the individual types of resources used. Monthly usage was studied by generating line graphs in Excel with trendlines to calculate overall guide usage trends. To determine the most sought-after types of resources by users, clicks for individual resources were categorized by type and focus using open coding in Google Sheets. Results: Overall guide usage was mixed, with some libraries’ guides trending upward over time and others downward. Analysis of the resource links showed that links to local and community health resources were among the most heavily clicked (64.11% of clicks), as were resources designed to help patients find healthcare providers and services (53.23%). Links to library-owned resources, such as books, journals, and databases, were generally clicked less (2.44%), as were links aimed at healthcare professionals (11.36%). Conclusions: The usage statistics for the guides were relatively low. However, the size of the LGBTQ+ community is relatively low compared to the general population and therefore LGBTQ+ health can be considered a category of minority health. We argue that the importance of providing quality LGBTQ+ health information outweighs any concerns of large-scale usage, and that providing such guides promotes health equity. The higher usage numbers for local resources supports the idea that guides are most useful when they link users to services and providers in their own communities. This suggests a best practice for librarians to focus on local resources and collaborations, and on consumer health resources, when creating and editing these guides.
    • Medical Humanities Lab: Re-envisioning library services to foster the growth of medical humanities in education and healthcare

      Grynoch, Tess; Palmer, Lisa A.; Raboin, Regina Fisher (2022-03-31)
      In this virtual presentation for the Medical Library Association Health Humanities Caucus, learn how UMass Chan Medical School’s Lamar Soutter Library successfully collaborates with faculty leaders and medical students in the Medical Humanities Lab, an initiative which integrates the arts and humanities into medical education and healthcare through student, faculty, and staff collaborations fostering humanism in medicine. The Library has provided leadership, technology expertise, space for in-person meetings, logistical support for virtual meetings, and promotional assistance. Over the past 3+ years, the Lab has sponsored projects, including a storytelling event, a creative writing and photography journal, a blog, two podcasts, and a creative writing website. The projects, many of which are openly accessible, address important themes including health inequality and the impact of incarceration on medical care. This presentation discusses the partnership, highlights projects, challenges, and facilitators of success, and features multimedia samples from our projects. Attendees also brainstormed new ways that their library can support medical humanities at their institution.
    • Medicinal Plant Extracts and Natural Compounds for the Treatment of Cutaneous Lupus Erythematosus: A Systematic Review

      Lubov, Janet E.; Jamison, Aisha S.; Baltich Nelson, Becky; Amudzi, Alice A.; Haas, Kelly N. (2022-03-31)
      Cutaneous lupus erythematosus (CLE) is a group of autoimmune connective tissue disorders that significantly impact quality of life. Current treatment approaches typically use antimalarial medications, though patients may become recalcitrant. Other treatment options include general immunosuppressants, highlighting the need for more and more targeted treatment options. The purpose of this systematic review was to identify potential compounds that could be repurposed for CLE from natural products since many rheumatologic drugs are derived from natural products, including antimalarials. This study was registered with PROSPERO, the international prospective register of systematic reviews (registration number CRD42021251048). We comprehensively searched Ovid Medline, Cochrane Library, and Scopus databases from inception to April 27th, 2021. These terms included cutaneous lupus erythematosus; general plant, fungus, bacteria terminology; selected plants and plant-derived products; selected antimalarials; and JAK inhibitors. Our search yielded 13,970 studies, of which 1,362 were duplicates. We screened 12,608 abstracts, found 12,043 to be irrelevant, and assessed 565 full-text studies for eligibility. Of these, 506 were excluded, and 59 studies were included in the data extraction. The ROBINS-I risk of bias assessment tool was used to assess studies that met our inclusion criteria. According to our findings, several natural compounds do reduce inflammation in lupus and other autoimmune skin diseases in studies using in vitro methods, mouse models, and clinical observational studies, along with a few randomized clinical trials. Our study has cataloged evidence in support of potential natural compounds and plant extracts that could serve as novel sources of active ingredients for the treatment of CLE. It is imperative that further studies in mice and humans are conducted to validate these findings.
    • E-Cigarettes - a review of the evidence - harm versus harm reduction

      Feeney, Susan; Rossetti, Victoria; Terrien, Jill M. (2022-03-29)
      The World Health Organization estimates there are 1.1 billion cigarette smokers across the globe and that tobacco related deaths number 7 million per year. Electronic nicotine delivery systems (ENDS) are available to contribute options for smoking cessation and include e-cigarettes, e-hookahs, vape pens, mods, and vaping. The growing use of ENDS, or e-cigarettes, in the US and globally across populations is dramatic. Although users may think that e-cigarettes are less harmful than combustible tobacco products, the evidence shows that there are known risks and harms for users. E-cigarettes have varying amounts of toxicants, nicotine, and carcinogens and put the user at risk for lung diseases and COVID-19 similar to smokers. Currently, most governing bodies have not approved e-cigarettes as a smoking cessation tool but do state if a person has failed conventional smoking cessation treatments that e-cigarettes used alone for the short term may help those to quit combustible tobacco and nicotine. A shared decision-making approach should be used when discussing e-cigarettes as a harm reduction tool. More studies and long-term data are needed to assess potential benefits and harms. What is known is that prevention efforts and policy are needed to avoid adolescents and other vulnerable populations from initiating tobacco or e-cigarette use.
    • Presentation: Health Literacy for Rural Populations

      Malachowski, Margot G. (2022-01-27)
      Region 7 was asked to present the content from NNLM's Rural Health Resources webinar in the first session of a two-day professional development event co-hosted by the Central New York Library Resources Council and the State University of New York/Upstate Medical University Health Sciences Library. The session examined the marked health disparities between those living in rural areas versus their urban counterparts. Not only do rural residents suffer from higher incidence of chronic illness, they also have limited access to primary care services and are more likely to be uninsured or under-insured. This session described hallmarks of rural America, identify access challenges of living in rural communities, and equip participants with tools to service the health information needs of those living in rural communities. We will explore websites from the National Library of Medicine, U.S. Department of Agriculture Economic Research Service, Rural Health Information Hub and the Robert Wood Johnson Foundation. The origins of each website was explained. Each of the websites contain consumer-level information and offers an opportunity for data downloads. The downloads will be demonstrated. These resources are relevant to nurses, librarians, public health workers, allied healthcare professionals, educators, faith- and community-based organizations.
    • Creating Accessible Online Instruction Using Universal Design Principles: A LITA Guide

      Vander Hart, Robert J. (Taylor & Francis, 2022)
      Review of the book "Creating Accessible Online Instruction Using Universal Design Principles: A LITA Guide," published by Rowman & Littlefield.
    • High variability in patient reported outcome utilization following hip fracture: a potential barrier to value-based care

      Schraut, Nicholas; Bango, Jugert; Flaherty, Alexandra; Rossetti, Victoria; Swart, Eric (2021-12-22)
      For patients with hip fractures, outcomes can be measured by giving surveys measuring "patient rated outcome measures" (PROMs), performance based measures (PBMS), and objective medical outcomes (e.g., mortality, living situation, resource utilization). This study reviewed articles on hip fracture published in top academic journals, and found that most studies are not reliably using a single set of outcome measures including PROMs, and no single PROM or outcome battery is being used commonly. PURPOSE/INTRODUCTION: Osteoporotic hip fractures are associated with high levels of morbidity, mortality, and cost, while gains in mortality over the past 30 years have been modest. To improve care beyond simple mortality metrics requires identifying and then consistently measuring outcomes that are meaningful to patients and families. The purpose of this study was to review the top-tier hip fracture literature published in the past 30 years to determine if there are consensus outcome measures being routinely used and if the rate of reporting clinically meaningful patient-rated outcome measures is improving over time. METHODS: This was a systematic review and meta-analysis on outcome measures reported in osteoporotic hip fractures. Articles were included if they had been published over the last 30 years and were from high impact factor journals. Inclusion criteria were elderly hip fractures, therapeutic or prognostic study, unique and identifiable patients, and included follow-up beyond initial hospitalization. We analyzed study type, inclusion criteria, outcomes reported, and journal specialty orientation. RESULTS: Three hundred eighty-four articles were included in the final analysis. Sixty-seven percent of the articles were therapeutic studies; 33% were prognostic studies. The average number of patients in each study was 435; the average age was 78 years. The most commonly reported outcome was mortality, and was present in 79% of studies. There was a high degree of heterogeneity in patient-reported outcome measures, with the most popular score (Harris Hip Score) reported only 14% of the time. Only 6% of articles had all components of essential core outcome sets previously defined in the literature. CONCLUSIONS: Despite the apparent advances that have been made in our ability to care for hip fractures, the overall rate of reporting outcomes beyond mortality rate remains low. This lack of consensus represents a major barrier to implementation of value-based care in this patient population.
    • Region 7 Hospital Librarians: What Medical Librarians Need to Know about Ransomware Attacks

      Malachowski, Margot G.; Stokes, Alice (2021-12-09)
      Region 7 develops webinars for a hospital librarian audience. Topics are determined by the Hospital Libraries Advisory Group (HLAG). Each webinar highlights a topic of concern to hospital librarians. Region 7 will identify subject experts to provide instruction either through WebEx or on-site at UMass Chan Medical School. The sessions begin with introduction of topic and subject expert, include discussion on the impact on library management, and conclude with time for questions and answers. Whenever possible, the sessions will be recorded. On January 11, 2018, Hancock Health in Greenfield, Indiana experienced a ransomware attack on the hospital's information systems. The hackers used compromised account credentials to target a server located in the emergency IT backup facility. This caused havoc with critical information systems. The University of Vermont Health Network in Burlington, Vermont was attacked on October 8, 2020, with malware infecting hospital information systems. In this webinar, Steve Long, CEO of Hancock Health, talked about his experiences with mobilizing disaster response procedures. Alice Stokes, Research and Education Librarian at the University of Vermont, addressed ways that library services are impacted by ransomware attacks.
    • Show Me the Data! Data Sharing Practices Demonstrated in Published UMass Chan Research

      Grynoch, Tess; MacKenzie, Kimberly (2021-10-28)
      In the interest of making data findable, accessible, interoperable, and reusable (FAIR), the National Institutes of Health (NIH) will institute a new Research Data Management and Sharing Policy in January 2023. This policy will require researchers applying for NIH funding to submit a Data Management and Sharing Plan. As 63% of grant dollars received by UMass Chan Medical School researchers comes from the NIH, we explored whether UMass Chan researchers are currently sharing data associated with their published research. PubMed was searched for articles published in 2019 with a UMass Chan researcher as either the first or last author. These articles were then examined for evidence of original or reused data, the type of data, whether the article stated that data was available, and where and how to find that data. Of the 713 articles found with a UMass Chan first and/or last author, 535 were research articles that produced original data or reused existing data. Of those articles with data, 57.4% (307) were NIH funded, 17.2% (92) had a data availability statement, and 10.8% had data deposited in a repository. This poster will highlight how the results of the study will inform our library services for researchers and provide tips on making UMass Chan data FAIR.
    • Centering the Margins: Creating a Land Acknowledgement for UMMS

      Grynoch, Tess; MacKenzie, Kimberly; Sjostedt, Kristine (2021-09-15)
      Slides for Centering the Margins: Land Acknowledgement Discussion held virtually for the UMass Chan community on September 15, 2021. The presentation covers the importance of a land acknowledgement, examples of land acknowledgements, and a brief history of the Nipmuc Nation.
    • Rural Health: Beyond the Binary Workshop

      Malachowski, Margot G. (2021-07-16)
      Region 7 priority areas serve to focus and inform our outreach, services, and resources. These areas guide the implementation of local and regional programming. The Pioneer Library System in Canandaigua, NY contacted Region 7 after several area librarians completed the NNLM Moodle course "Beyond the Binary". They requested a workshop based on the course. The workshop would be offered as part of a standing training session for public librarians in rural New York. Coordinators Margot Malachowski and Bennie Finch attended the training session. Margot was the lead instructor and Bennie assisted with the chat discussion. After attending the session, public librarians would be able to: List four key points regarding the health information needs of the LGBTQIA+ community; List three concepts for providing a welcoming environment for sexual and gender minorities; and identify three resources for providing health information regarding sexual and gender minorities. During the "Beyond the Binary Workshop", we introduced the National Library of Medicine and the Network of the National Library of Medicine. We explained that we would be covering the highlights of the 4-week "Beyond the Binary" Moodle course. We encouraged participants to share what they were comfortable sharing and to ask what they wanted to ask. The LGBTQIA+ community faces many barriers in accessing healthcare. Consequently, some in the LGBTQIA+ community do not regularly access appropriate and timely care that they need. This workshop discussed cultural humility. Humility encourages self-reflection as we learn about the cultures of any community that is not our own. We covered four key points: delays in getting health care; insensitive health care providers; stress-related illnesses; and difficulty finding culturally sensitive materials. Three concepts for providing a welcoming environment for sexual and gender minorities are: to become comfortable with using they/them pronouns as singular; display LGBTQIA+ friendly symbols, such as rainbow flags and including your pronouns in announcements and email signatures; and use inclusive images in library materials, such as the images from the Gender Spectrum Collection. We did live searching for health information in these resources: MedlinePlus: LGBTQ+ Health Topics Page; Centers for Disease Control and Prevention (CDC): Lesbian, Gay, Bisexual and Transgender Health, including Youth; and Fenway Health: National LGBT Health Education Center
    • Lightning Talk: Updating Nursing on the Net

      Malachowski, Margot G. (2021-06-30)
      From 2019-2021, the Network of the National Library of Medicine embarked on a process to update the course "Nursing on the Net". This lightning talk described a team-based process that resulted in a three-week asynchronous course designed for library staff who support, or who want to support, nursing and allied health professionals. The new course, "Building Reference Skills for Nursing and Allied Health Research", enables librarians to connect freely available resources to the needs of nursing and allied health professionals.
    • Systematic review of prospective studies focused on regionalization of care in surgical oncology

      Goel, Shokhi; Symer, Matthew M.; Alzghari, Talal; Baltich Nelson, Becky; Yeo, Heather L. (2021-05-24)
      To perform a systematic review of studies prospectively analyzing the impact of regionalization of complex surgical oncology care on patient outcomes. High volume care of complex surgical oncology patients has been repeatedly associated with improved outcomes. Most studies, however, are retrospective and have not prospectively accounted for confounders such as financial ability and social support. Four electronic databases (Ovid MEDLINE(R), Ovid EMBASE, Cochrane Library (Wiley), and EBSCHOHost) were searched from inception until August 25, 2018. Two authors independently reviewed 5887 references, with a third independent reviewer acting as arbitrator when needed. Data extracted from 11 articles that met inclusion criteria. Risk of bias assessments conducted using MINORS criteria for the non-randomized, observational studies, and the Cochrane tool for the randomized-controlled trial. Of the 11 studies selected, we found 7 historically-controlled trials, two retrospective cohort studies with prospective data collection, one prospective study, and one randomized-controlled trial. 73% of studies were from Northern Europe, 18% from Ontario, Canada, and 9% from England. Pancreatic surgery accounted for 36% of studies, followed by gynecologic oncology (27%), thoracic surgery (18%), and dermatologic surgery (9%). The studies reported varying outcome parameters, but all showed improvement post-regionalization. Included studies featured poor-to-fair risk of bias. 11 studies indicated improved outcomes following regionalization of surgical oncology, but most exhibit poor methodological rigor. Prospective evidence for the regionalization of surgical oncology is lacking. More research addressing patient access to care and specialist availability is needed to understand the shortcomings of centralization.
    • Presentation: NNLM Course Development for Building Nursing and Allied Health Research Skills

      Malachowski, Margot G.; Sheppard, Margie; Knapp, Molly; Majewski, Katherine; Waltman, Elizabeth; Hamstra, Emily (2021-05-24)
      In 2019, the Network of the National Library of Medicine embarked on a process to update a course that aimed to 1) teach participants how to evaluate quality health websites for nurses; 2) enable participants to describe and evaluate quality nursing resources available on the internet; and 3) demonstrate searches for nursing literature in PubMed. The curriculum development team further refined these objectives. The new course would enable participants to connect National Library of Medicine resources to the needs of nursing and allied health professionals. After taking the course, participants would be able to list the ways librarians can support the information needs of their nursing and allied health audiences. The NNLM curriculum development team met from November 2019 through December 2020 to develop a course that would be launched in early 2021. In the kick-off meeting, the team agreed to investigate needs and best practices for librarians teaching nursing and allied health professionals. Members of the team divided up course development tasks. They reconvened bimonthly to share relevant information resources, sharpen the learning objectives, and share ideas for course activities such as readings, quizzes, and written assignments. The result is a three-week asynchronous course that is designed for library staff who support, or who want to support, nursing and allied health professionals. In Week One, participants learn about the information needs of nursing and allied health professionals. Week Two introduces participants to relevant information resources. Week Three asks participants to apply learning through creating and sharing a professional development plan. We gathered evaluation data after the pilot launch in December 2020 and the three sessions taught in early 2021. We will address participant needs for better navigation and more time to complete the professional development plan. We hope to offer the course again in Summer 2021.
    • Association of Pharmacological Interventions With Symptom Burden Reduction in Patients With Mild Traumatic Brain Injury: A Systematic Review

      Feinberg, Charles; Carr, Catherine W.; Zemek, Roger; Yeates, Keith Owen; Master, Christina; Schneider, Kathryn; Bell, Michael J.; Wisniewski, Stephen; Mannix, Rebekah (2021-05-01)
      Importance: Mild traumatic brain injury (TBI) is experienced by 55.9 million people globally each year. The symptoms of mild TBI are diverse and sometimes long-lasting, requiring frequent use of pharmacological interventions to mitigate them. A thorough understanding of the data supporting pharmacological interventions is important for decision-making among clinicians treating this common injury. Objective: To systematically review studies of pharmacological interventions and their associations with symptom burden reduction among patients with mild TBI and to use an evidence-based model to identify potential directions for future research that may aid in clinical decision-making. Evidence Review: A systematic review was performed in PubMed, Scopus, and Web of Science. Search strings modified for the advanced search interfaces of each search engine were developed in consultation with a librarian and included combinations of search terms, such as brain concussion, post-concussion syndrome, mild traumatic brain injury, and pharmacological treatment. Articles published between January 1, 2000, and July 1, 2020, were analyzed. Studies were included if (1) they were clinical studies with discrete analyses of participants with mild TBI or complicated mild TBI, (2) they were assessments of a pharmacological intervention, (3) they included human participants, and (4) they were published in a peer-reviewed journal in the English language. Studies were excluded if the severity of TBI among participants could not be ascertained (ie, inadequate definition of mild TBI) and the inclusion criteria for the study required intracranial hemorrhage. A total of 23 studies examining 20 pharmacological interventions met the inclusion criteria. Risk of bias was assessed using the Cochrane Risk of Bias for Randomized Trials (for randomized clinical trials) and the Cochrane Risk of Bias in Non-Randomized Studies of Interventions (for all other studies). Data were analyzed from June to September 2020. Findings: A total of 1495 articles were identified; of those, 131 articles were excluded as duplicates. Titles and abstracts were screened for inclusion and exclusion criteria among the remaining 1364 articles, and 134 of those articles received a full-text review. After exclusions, 23 studies (11 randomized clinical trials, 7 prospective observational studies, 3 retrospective observational studies, and 2 case studies) examining 20 pharmacological interventions were identified for inclusion in the systematic review. Studies included 22 distinct participant populations comprising 8277 participants with mild TBI and 45 participants without TBI. Among 23 total studies, 8 studies specifically addressed the pediatric population, 9 studies had a low risk of bias, and 16 studies reported symptom burden reduction. Of the 20 pharmacological interventions examined in the studies, methylphenidate, sertraline hydrochloride, ondansetron, amitriptyline, and melatonin were the only medications included in multiple studies. Conclusions and Relevance: This systematic review found a limited number of high-quality, clinically meaningful studies, particularly among children and individuals in the acute stage of injury; therefore, performing an evidence-based analysis that would inform clinical decision-making was not possible. Future studies are needed to focus on standardizing measures and increasing sample sizes (including large multicenter clinical trials) to generate a body of research that may provide additional options for the treatment of patients with mild TBI.
    • Automated Data Cleaning with OpenRefine

      Grynoch, Tess (2021-04-07)
      Overview of the benefits and uses of OpenRefine and demonstration of some of its data cleaning functions and how to automate them.