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Document Type
OtherPublication Date
2018-03-09Keywords
UMass Center for Clinical and Translational ScienceCommunity Engagement and Research Symposium
community-engaged research
posters
Civic and Community Engagement
Community-Based Research
Community Health and Preventive Medicine
Public Health
Translational Medical Research
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Show full item recordAbstract
Abstracts of posters presented at the 7th annual Community Engagement and Research Symposium, held Friday, March 9, 2018, at the University of Massachusetts Medical School, Worcester, MA. Some presenters have made the full text of their posters available; these posters can be viewed in the symposium's Poster Archive.DOI
10.13028/57rr-sd15Permanent Link to this Item
http://hdl.handle.net/20.500.14038/26724Rights
Copyright the Author(s)Distribution License
http://creativecommons.org/licenses/by-nc-sa/3.0/ae974a485f413a2113503eed53cd6c53
10.13028/57rr-sd15
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"Our lab is the community": Defining essential supporting infrastructure in engagement researchNease, Donald E. Jr.; Burton, Dee; Cutrona, Sarah L; Edmundson, Lauren; Krist, Alex H.; Laws, Michael Barton; Tamez, Montelle (2018-08-01)Introduction: Effective patient engagement is central to patient-centered outcomes research. A well-designed infrastructure supports and facilitates patient engagement, enabling study development and implementation. We sought to understand infrastructure needs from recipients of Patient-Centered Outcomes Research Institute (PCORI) pilot grant awards. Methods: We surveyed recipients of PCORI pilot project awards on self-perceived strengths in engagement infrastructure through PCORI's Ways of Engaging-Engagement Activity Tool survey, and interviewed leaders of 8 projects who volunteered as exemplars. Descriptive statistics summarized the survey findings. We conducted a thematic analysis of the interview transcripts. Results: Of the 50 surveyed pilots, 22 answered the engagement infrastructure questions (44% response rate). Survey and interview findings emphasized the importance of committed institutional leadership, ongoing relationships with stakeholder organizations, and infrastructure funding through Clinical and Translational Science Awards, PCORI, and institutional discretionary funds. Conclusions: These findings highlight the importance of and how to improve upon existing institutional infrastructure.
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