Civic and Community Engagement
Community Health and Preventive Medicine
Health Services Research
Translational Medical Research
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AbstractBreakout Session 1B: This workshop offers a different approach to improving communication between community members and researchers. Presenters will demonstrate improvisational theater techniques that help build skills around connecting authentically with an audience, paying attention to others, and reading body language. The purpose of this approach is to build a bridge among community members, patients, providers, researchers, and other stakeholders involved in health-related research. Researchers often struggle to clearly communicate the purpose of their research and its implications, which leaves community members uninspired to engage. This skills-based workshop will introduce elements from theater training to encourage participants to communicate better as partners in research. Using techniques adapted from the Alda MethodTM of the Alan Alda Center for Communicating Science, the leaders will demonstrate ways of reframing research to be community-oriented, conversational, and accessible without “dumbing it down.” These techniques have been used to build interest in community engagement, develop community advisory panels, and aid study recruitment, among other applications. Participants will learn: distilling techniques to communicate about research or health using clear, vivid language the value of focusing on the needs of the audience relationship building techniques through empathy, listening, and authentic connection.
Permanent Link to this Itemhttp://hdl.handle.net/20.500.14038/26725
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"Our lab is the community": Defining essential supporting infrastructure in engagement researchNease, Donald E. Jr.; Burton, Dee; Cutrona, Sarah L.; Edmundson, Lauren; Krist, Alex H.; Laws, Michael Barton; Tamez, Montelle (2018-08-01)Introduction: Effective patient engagement is central to patient-centered outcomes research. A well-designed infrastructure supports and facilitates patient engagement, enabling study development and implementation. We sought to understand infrastructure needs from recipients of Patient-Centered Outcomes Research Institute (PCORI) pilot grant awards. Methods: We surveyed recipients of PCORI pilot project awards on self-perceived strengths in engagement infrastructure through PCORI's Ways of Engaging-Engagement Activity Tool survey, and interviewed leaders of 8 projects who volunteered as exemplars. Descriptive statistics summarized the survey findings. We conducted a thematic analysis of the interview transcripts. Results: Of the 50 surveyed pilots, 22 answered the engagement infrastructure questions (44% response rate). Survey and interview findings emphasized the importance of committed institutional leadership, ongoing relationships with stakeholder organizations, and infrastructure funding through Clinical and Translational Science Awards, PCORI, and institutional discretionary funds. Conclusions: These findings highlight the importance of and how to improve upon existing institutional infrastructure.
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Building Capacity in Health Disparities ResearchFouad, Mona (2019-03-22)Mona Fouad, MD, MPH is Professor of Medicine, Director of the Division of Preventive Medicine, and Senior Associate Dean for Diversity and Inclusion in the School of Medicine at the University of Alabama at Birmingham, and Founding Director of the UAB Minority Health and Health Disparities Research Center. She is recognized nationally as a leader in health disparities research and served as a member of the National Institutes of Health (NIH) National Advisory Council on Minority Health and Health Disparities from 2008-2012. In 2017, Dr. Fouad was elected a member of the National Academy of Medicine. She obtained her MD from Alexandria University School of Medicine in Alexandria, Egypt, and her MPH from the University of Alabama at Birmingham School of Public Health. Dr. Fouad’s career has focused on the health of minority and underserved populations, including efforts to increase involvement of special and underrepresented populations in research. She serves as PI of the NIMHD U54 Obesity Health Disparities Research Center (OHDRC), previously funded since 2003 as an NIMHD P60 Center of Excellence. The OHDRC focuses on the theme of obesity and obesity-related health disparities across the Life Course. Dr. Fouad has contributed to the science of health disparities through major studies to identify variability in cancer care and outcomes based on race, gender, and age. She has developed nationally emulated models in recruitment and retention of minorities in clinical trials and innovative community-based approaches to reducing racial disparities in breast and cervical cancer. She has been the driving force behind interdisciplinary research efforts for understanding problems related to cancer screening and cancer risk factors in the Deep South. Her work in translating science into practice has improved health outcomes in minority and other vulnerable populations. As a direct result of her research projects, racial disparities in breast cancer screening in Alabama Black Belt counties were virtually eliminated, as were disparities in access to cancer care. Dr. Fouad has also played a prominent leadership role, both regionally and nationally, in promoting diversity in medical education. Dr. Fouad has led in the efforts to promote minority students, researchers, and leaders through joint programs with Historically Black Colleges and Universities (HBCUs) and other minority-serving academic institutions. She serves as PI of the NIDDK-funded UAB STEP-UP: Promoting Diversity through Mentored Research Experiences, whose goal is to enhance the diversity of the nation’s research workforce by providing mentored research training to promising undergraduate students from diverse backgrounds underrepresented in biomedical, clinical and behavioral research. In this presentation, Dr. Fouad will review the history of health disparities and health disparities research, and highlight community-based projects that address health disparities.