Communicative Competence for Researchers working with LGBTQ Communities
Simulation-based Community-engaged Research Intervention for Informed Consent Protocol Testing and Training (SCRIIPTT)
Civic and Community Engagement
Community Health and Preventive Medicine
Gender, Race, Sexuality, and Ethnicity in Communication
Translational Medical Research
MetadataShow full item record
AbstractThe ethical principles of respect and justice oblige the use of culturally sensitive approaches when engaging participants in research, however cultural competence training is lacking for researchers who work with LGBTQ populations. The purpose of this study was to explore how researchers can create a welcoming research environment for LGBTQ research participants in the context of historical distrust of medical research as a barrier to research participation among minority populations. Grounded by a framework of communicative competence, this study explored elements of preferred communication during recruitment and informed consent for research involving LGBTQ participants. Grammatical, sociolinguistic, strategic and discourse competence domains aided exploration of the preferences held by participants in LGBTQ sub-groups, as well as the perceived barriers to research. Thirty-six participants, who self-identified as part of the LGBTQ community and were recruited through our community partner, the Center for Health Impact, took part in either focus groups or individual interviews. Preliminary analysis reveals community engagement and building trust are key, particularly in an academic medical center where a patient's clinical experiences may impact their willingness to become a research participant. Participants offered insight into each competence domain, covering: terminology to promote inclusivity, body language to avoid, reducing stigma by being up front and feedback on crafting a more LGBTQ-friendly basic demography questionnaire. These findings will aid in the refinement of an LGBTQ-focused version of our Simulation-based Community-engaged Research Intervention for Informed Consent Protocol Testing and Training (SCRIIPTT) to build communicative competence among clinical researchers.
Permanent Link to this Itemhttp://hdl.handle.net/20.500.14038/26742
RightsCopyright the Author(s)
Showing items related by title, author, creator and subject.
Communities for Healthy Living: A Holistic Approach to Engaging Head Start Families to Improve Health OutcomesAftosmes-Tobio, Alyssa; Lansburg, Kindra (2019-03-22)The Communities for Healthy Living (CHL) project is a five year, pragmatic intervention trial to reduce and prevent childhood obesity among low-income preschoolers in the Greater Boston area. This workshop will demonstrate the successes and challenges of engaging parents as participants and leaders of a participatory intervention to prevent childhood obesity. Key lessons learned; give insight on how staff and parents were engaged from the outset; and what this type of program can offer diverse groups of parents. With a particular focus on the participatory nature of our work, we will describe the stages of our trial and discuss the current status of the project. Presenters will outline how CHL differs from other childhood obesity prevention trials, and place emphasis on their parent health and empowerment program – the keystone to the project. The presenters will lead the group in several activities taken directly from the parent program, to illustrate how parents of varying backgrounds and literacy levels can be engaged around health topics.
"Our lab is the community": Defining essential supporting infrastructure in engagement researchNease, Donald E. Jr.; Burton, Dee; Cutrona, Sarah L.; Edmundson, Lauren; Krist, Alex H.; Laws, Michael Barton; Tamez, Montelle (2018-08-01)Introduction: Effective patient engagement is central to patient-centered outcomes research. A well-designed infrastructure supports and facilitates patient engagement, enabling study development and implementation. We sought to understand infrastructure needs from recipients of Patient-Centered Outcomes Research Institute (PCORI) pilot grant awards. Methods: We surveyed recipients of PCORI pilot project awards on self-perceived strengths in engagement infrastructure through PCORI's Ways of Engaging-Engagement Activity Tool survey, and interviewed leaders of 8 projects who volunteered as exemplars. Descriptive statistics summarized the survey findings. We conducted a thematic analysis of the interview transcripts. Results: Of the 50 surveyed pilots, 22 answered the engagement infrastructure questions (44% response rate). Survey and interview findings emphasized the importance of committed institutional leadership, ongoing relationships with stakeholder organizations, and infrastructure funding through Clinical and Translational Science Awards, PCORI, and institutional discretionary funds. Conclusions: These findings highlight the importance of and how to improve upon existing institutional infrastructure.
Achieving Health Equity: The Role of Innovative Community PartnershipsBoynton-Jarrett, Renée (2018-03-09)Video includes Symposium welcome and introductions. Navigate to 5:30 in the video for the keynote presentation. Dr. Renée Boynton-Jarrett, MD, ScD is Associate Professor of Pediatrics, Boston Medical Center/Boston University School of Medicine, and Director, Vital Village Community Engagement Network. Dr. Boynton-Jarrett is nationally recognized for her expertise in the role of early-life adversities as life course social determinants of health. Through BMC Vital Village Network she has supported the development of community-based strategies to promote child wellbeing and equity and prevent adversity by building community capacities. During this presentation, she will discuss the role of using a trauma-informed framework to promote systems alignment, and innovative, cross-sector partnerships to improve wellbeing and achieve equity. This presentation will review the contribution of early life adversities and adverse social environments to inequities in health, with a focus on the role of social stress as a driver of inequities. One learning objective is to review new medical competencies that consider structural violence and social forces, as a strategy to transform models of practice and care. An additional objective of the presentation is to situate the current use of metrics of wellbeing and improve the utility of metrics to track progress, and implement local improvements over time by sharing examples of how participatory strategies, community engagement, and community-based research methods can be incorporated in the work of Vital Village Network. Finally, the presentation will share strategies for scaling local innovations and the essential role of civic participation for building community capacity to achieve health equity. The BMC Vital Village Network integrates a trauma-informed framework to cultivate partnerships between community residents and agencies and align systems of care and education. This presentation will ask the question of what cross-sector partnerships and innovative strategies arise from a paradigm shift that frames early life adversities as life course social determinants of health.