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    ALS care: a resource for measuring and improving ALS outcomes

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    Authors
    Anderson, Frederick A. Jr.
    Miller, Robert G.
    UMass Chan Affiliations
    Center for Outcomes Research
    Document Type
    Journal Article
    Publication Date
    1996-10-01
    Keywords
    Amyotrophic Lateral Sclerosis
    Humans
    *Patient Care Planning
    Prognosis
    Health Services Administration
    Health Services Research
    Medical Education
    Nervous System Diseases
    Nutritional and Metabolic Diseases
    
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    Link to Full Text
    https://insights.ovid.com/neurology/neur/1996/10/002/als-care-resource-measuring-improving-outcomes/19/00006114
    Abstract
    The Amyotrophic Lateral Sclerosis Clinical Assessment, Research, and Education Project (ALS CARE) will conduct outcomes research and develop educational programs that benefit ALS patients and neurologists. An advisory board of neurologists, who are experts in ALS, will establish the policies governing this project and control the dissemination of aggregate data on ALS practices and outcomes. As a first step toward improving the care of ALS patients, a data coordinating center has been established in the Center for Outcomes Research at the University of Massachusetts Medical Center, which will manage a North American Database of ALS Outcomes. This voluntary database is designed to (1) guide the development of educational programs to improve the care of ALS patients and (2) provide a mechanism for neurologists to evaluate the impact of their diagnostic and therapeutic decisions in a manner that is timely, confidential, and objective.
    Source

    Neurology. 1996 Oct;47(4 Suppl 2):S113-5; discussion S115-6.

    Permanent Link to this Item
    http://hdl.handle.net/20.500.14038/27098
    PubMed ID
    8858064
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