• Login
    View Item 
    •   Home
    • UMass Chan Departments, Programs and Centers
    • Center for Outcomes Research
    • ALS C.A.R.E. Publications
    • View Item
    •   Home
    • UMass Chan Departments, Programs and Centers
    • Center for Outcomes Research
    • ALS C.A.R.E. Publications
    • View Item
    JavaScript is disabled for your browser. Some features of this site may not work without it.

    Browse

    All of eScholarship@UMassChanCommunitiesPublication DateAuthorsUMass Chan AffiliationsTitlesDocument TypesKeywordsThis CollectionPublication DateAuthorsUMass Chan AffiliationsTitlesDocument TypesKeywords

    My Account

    LoginRegister

    Help

    AboutSubmission GuidelinesData Deposit PolicySearchingAccessibilityTerms of UseWebsite Migration FAQ

    Statistics

    Most Popular ItemsStatistics by CountryMost Popular Authors

    Changes in the management of ALS since the publication of the AAN ALS practice parameter 1999

    • CSV
    • RefMan
    • EndNote
    • BibTex
    • RefWorks
    Authors
    Bradley, W. G.
    Anderson, Frederick A. Jr.
    Gowda, Neelam
    Miller, Robert G.
    UMass Chan Affiliations
    Center for Outcomes Research
    Document Type
    Journal Article
    Publication Date
    2004-12-01
    Keywords
    Academies and Institutes
    Amyotrophic Lateral Sclerosis
    *Databases, Factual
    Disease Management
    Humans
    Neurology
    Palliative Care
    Practice Guidelines as Topic
    United States
    Health Services Research
    
    Metadata
    Show full item record
    Link to Full Text
    http://search.ebscohost.com/login.aspx?direct=true&db=byh&AN=15545291&site=ehost-live
    Abstract
    OBJECTIVE: To determine if the publication in 1999 of the AAN Practice Parameter on ALS was associated with an improvement in the standard of management of the disease. METHODS: Data on 646 patients enrolled in the ALS CARE database and on 465 patients who died in the period May 2001 to November 2002 were compared with similar data obtained from the database from 1996 to May 1999. RESULTS: The specialty ALS clinics were the most important source of information about ALS. The internet was a source for 39%. The treatment of sialorrhea, pseudobulbar emotional lability, and failure of swallowing and breathing had all improved significantly in the period after the publication of the Practice Parameter. However many patients still did not receive a gastrostomy tube or non-invasive positive pressure ventilation when indicated by the Practice Parameter, mainly because of lack of patient compliance. Cost was the main reason why 41% of patients did not receive riluzole, though they spent a third of the cost of this medication on alternative medicines. CONCLUSIONS: The publication of the AAN Practice Parameter was associated with improvement in the standard of care. Most cases in the database come from specialized ALS centers, and further information on the community care of ALS patients is needed.
    Source
    Amyotroph Lateral Scler Other Motor Neuron Disord. 2004 Dec;5(4):240-4.
    Permanent Link to this Item
    http://hdl.handle.net/20.500.14038/27101
    PubMed ID
    15799554
    Related Resources
    Link to Article in PubMed
    Collections
    ALS C.A.R.E. Publications

    entitlement

    DSpace software (copyright © 2002 - 2023)  DuraSpace
    Lamar Soutter Library, UMass Chan Medical School | 55 Lake Avenue North | Worcester, MA 01655 USA
    Quick Guide | escholarship@umassmed.edu
    Open Repository is a service operated by 
    Atmire NV
     

    Export search results

    The export option will allow you to export the current search results of the entered query to a file. Different formats are available for download. To export the items, click on the button corresponding with the preferred download format.

    By default, clicking on the export buttons will result in a download of the allowed maximum amount of items.

    To select a subset of the search results, click "Selective Export" button and make a selection of the items you want to export. The amount of items that can be exported at once is similarly restricted as the full export.

    After making a selection, click one of the export format buttons. The amount of items that will be exported is indicated in the bubble next to export format.