Barriers and Facilitators to Deaf Trauma Survivors’ Help-Seeking Behavior: Lessons for Behavioral Clinical Trials Research: A Master’s Thesis
AuthorsAnderson, Melissa L
Faculty AdvisorDouglas M. Ziedonis, MD, MPH
Academic ProgramMaster of Science in Clinical Investigation
UMass Chan AffiliationsPsychiatry
Document TypeMaster's Thesis
Persons With Hearing Impairments
Persons With Hearing Impairments
Deaf Trauma Survivors
Behavior and Behavior Mechanisms
Communication Sciences and Disorders
Health Services Administration
Health Services Research
MetadataShow full item record
AbstractDeaf individuals experience significant obstacles to participating in behavioral health research when careful consideration is not given to accessibility in the design of study methodology. To inform such considerations, we conducted a secondary analysis of a mixed-methods study that explored 16 Deaf trauma survivors’ help-seeking experiences. Our objective was to identify key findings and qualitative themes from consumers' own words that can be applied to the design of behavioral clinical trials methodology. In many ways, the themes that emerged are what we would expect of any research participant, Deaf or hearing – a need for communication access, empathy, respect, strict confidentiality procedures, trust, and transparency of the research process. However, additional considerations must be made to better recruit, retain, and engage Deaf trauma survivors. We summarize our findings in a “Checklist for Designing Deaf Behavioral Clinical Trials” to operationalize the steps researchers should take to apply Deaf-friendly approaches in their empirical work.
Permanent Link to this Itemhttp://hdl.handle.net/20.500.14038/32186
RightsCopyright is held by the author, with all rights reserved.
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