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    Emergency preparedness of families of children with developmental disabilities: what public health and safety emergency planners need to know

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    Authors
    Wolf-Fordham, Susan
    Curtin, Carol
    Maslin, Melissa C. T.
    Bandini, Linda G.
    Hamad, Charles D.
    UMass Chan Affiliations
    Department of Pediatrics, Division of Developmental and Behavioral Pediatrics
    Department of Family Medicine and Community Health
    Eunice Kennedy Shriver Center, Commonwealth Medicine
    Intellectual and Developmental Disabilities Research Center
    Document Type
    Journal Article
    Publication Date
    2015-01-01
    Keywords
    Community Health
    Community Health and Preventive Medicine
    Emergency and Disaster Management
    Mental Disorders
    Pediatrics
    Public Health Education and Promotion
    
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    Link to Full Text
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4487877/
    Abstract
    OBJECTIVE: To assess the emergency preparedness knowledge, behaviors, and training needs of families of children with developmental disabilities (DD). DESIGN: An online survey. PARTICIPANTS: A sample of 314 self-selecting US parents/guardians of children with DD, aged birth-21 years. MAIN OUTCOME MEASURES: 1) Preparedness self-assessment; 2) self-report regarding the extent to which families followed 11 specific preparedness action steps derived from publicly available preparedness guides; and 3) parent training and support needs. RESULTS: Although most participants assessed themselves to be somewhat to moderately well prepared, even those who reported being "very well prepared" had taken fewer than half of 11 recommended action steps. Most participants expressed a need for preparedness support; virtually all the respondents felt that training was either important or very important. CONCLUSIONS: Children with disabilities are known to be particularly vulnerable to negative disaster impacts. Overall, parents in this study appeared under-prepared to meet family disaster needs, although they recognized its importance. The results suggest opportunities and methods for public health and safety planning, education and outreach to parents of children with DD who would benefit from targeted training such as information and skill building to develop effective family preparedness plans and connections to local emergency management and responders.
    Source
    Wolf-Fordham S, Curtin C, Maslin M, Bandini L, Hamad CD. Emergency preparedness of families of children with developmental disabilities: what public health and safety emergency planners need to know. J Emerg Manag. 2015 Jan-Feb;13(1):7-18. doi: 10.5055/jem.2015.0213. PubMed PMID: 25779895. Link to article on publisher's site
    DOI
    10.5055/jem.2015.0213
    Permanent Link to this Item
    http://hdl.handle.net/20.500.14038/34831
    PubMed ID
    25779895
    Related Resources
    Link to Article in PubMed
    ae974a485f413a2113503eed53cd6c53
    10.5055/jem.2015.0213
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