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    Patients' and family members' views on patient-centered communication during cancer care

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    Authors
    Mazor, Kathleen M.
    Beard, Renee L.
    Alexander, Gwen L.
    Arora, Neeraj K.
    Firneno, Cassandra L.
    Gaglio, Bridget
    Greene, Sarah M.
    Lemay, Celeste A.
    Robinson, Brandi E.
    Roblin, Douglas W.
    Walsh, Kathleen E.
    Street, Richard L. Jr.
    Gallagher, Thomas H.
    Show allShow less
    UMass Chan Affiliations
    Department of Pediatrics
    Meyers Primary Care Institute
    Document Type
    Journal Article
    Publication Date
    2013-11-01
    Keywords
    UMCCTS funding
    Health Communication
    Health Psychology
    Health Services Research
    Neoplasms
    Oncology
    Primary Care
    
    Metadata
    Show full item record
    Link to Full Text
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3808529/
    Abstract
    OBJECTIVES: To explore patients' and family members' views on communication during cancer care and to identify those aspects of clinician-patient communication which were most important to patients and family members. METHODS: We conducted a secondary data analysis of qualitative data from 137 patients with cancer and family members of patients with cancer. We used a modified version of the constant comparative method and coding paradigm of grounded theory. RESULTS: Patients want sensitive, caring clinicians who provide information that they need, when they need it, in a way that they can understand; who listen and respond to questions and concerns, and who attempt to understand the patient's experience. Effective information exchange and a positive interpersonal relationship with the clinician were of fundamental importance to patients and family members. These were interrelated; for instance, failure to provide information a patient needed could damage the relationship, whereas excellent listening could foster the relationship. Information exchange and relationship were also integral to decision-making, managing uncertainty, responding to emotions, and self-management. Clinicians who were responsive to patients' needs beyond the immediate medical encounter were valued. CONCLUSIONS: The complexity of cancer care today suggests that efforts to improve communication must be multilevel, acknowledging and addressing patient, clinician, organizational and policy barriers, and facilitators. Measurement tools are needed to assess cancer patients' and family members' experiences with communication over the course of cancer care to provide meaningful, actionable feedback to those seeking to optimize their effectiveness in communicating with patients with cancer.
    Source

    Mazor KM, Beard RL, Alexander GL, Arora NK, Firneno C, Gaglio B, Greene SM, Lemay CA, Robinson BE, Roblin DW, Walsh K, Street RL Jr, Gallagher TH. Patients' and family members' views on patient-centered communication during cancer care. Psychooncology. 2013 Nov;22(11):2487-95. doi: 10.1002/pon.3317. Link to article on publisher's site

    DOI
    10.1002/pon.3317
    Permanent Link to this Item
    http://hdl.handle.net/20.500.14038/37257
    PubMed ID
    23780672
    Related Resources

    Link to Article in PubMed

    ae974a485f413a2113503eed53cd6c53
    10.1002/pon.3317
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