General population normative data for the EORTC QLQ-C30 health-related quality of life questionnaire based on 15,386 persons across 13 European countries, Canada and the Unites States
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Authors
Nolte, S.Liegl, G.
Petersen, M. A.
Aaronson, N. K.
Costantini, A.
Fayers, P. M.
Groenvold, M.
Holzner, B.
Johnson, C. D.
Kemmler, G
Tomaszewski, K. A.
Waldmann, A.
Young, T. E.
Rose, Matthias S. F.
UMass Chan Affiliations
Department of Quantitative Health Sciences, Outcomes Measurement ScienceDocument Type
Journal ArticlePublication Date
2019-01-01Keywords
CanadaEORTC QLQ-C30
Europe
General population
Quality of life
US
norm data
normative data
patient-reported outcomes
self-report
survey
Clinical Epidemiology
Epidemiology
Health Services Research
Neoplasms
Statistics and Probability
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OBJECTIVE: The European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 health-related quality of life questionnaire is one of the most widely used cancer-specific health-related quality of life questionnaires worldwide. General population norm data can facilitate the interpretation of QLQ-C30 data obtained from cancer patients. This study aimed at systematically collecting norm data from the general population to develop European QLQ-C30 norm scores and to generate comparable norm data for individual countries in Europe and North America. METHODS: We collected QLQ-C30 data from the general population across 11 European Union (EU) countries, Russia, Turkey, Canada and United States (n > /= 1000/country). Representative samples were stratified by sex and age groups (18-39, 40-49, 50-59, 60-69 and > /= 70 years). After applying weights based on the United Nations population distribution statistics, we calculated QLQ-C30 domain scores to generate a 'European QLQ-C30 Norm' based on the EU countries. Further, we calculated QLQ-C30 norm scores for all 15 individual countries. RESULTS: A total of 15,386 respondents completed the online survey. For the EU sample, most QLQ-C30 domains showed differences by sex/age, with men scoring somewhat better health than women, while age effects varied across domains. Substantially larger differences were seen in inter-country comparisons, with Austrian and Dutch respondents reporting consistently better health compared with British and Polish respondents. CONCLUSIONS: This study is the first to systematically collect EORTC QLQ-C30 general population norm data across Europe and North America applying a consistent data collection method across 15 countries. These new norm data facilitate valid intra-country as well as inter-country comparisons and QLQ-C30 score interpretation.Source
Eur J Cancer. 2019 Jan;107:153-163. doi: 10.1016/j.ejca.2018.11.024. Epub 2018 Dec 19. Link to article on publisher's site
DOI
10.1016/j.ejca.2018.11.024Permanent Link to this Item
http://hdl.handle.net/20.500.14038/40900PubMed ID
30576971Related Resources
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Copyright 2018 The Authors. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).Distribution License
http://creativecommons.org/licenses/by-nc-nd/4.0/ae974a485f413a2113503eed53cd6c53
10.1016/j.ejca.2018.11.024
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Except where otherwise noted, this item's license is described as Copyright 2018 The Authors. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).