Phase 1 – Community Forums Deaf ACCESS: Adapting Consent Through Community Engagement and State-Of-The-Art Simulation [English and Spanish versions]

Abstract

In 2016, the University of Massachusetts Medical School (UMMS), in partnership with Brown University, was awarded a 2-year grant from the National Institute on Deafness and Other Communication Disorders (NIDCD) to improve Deaf people’s trust and involvement in biomedical research. The Deaf ACCESS: Adapting Consent through Community Engagement and State-of-the-art Simulation research team is led by Melissa Anderson from UMMS and Co-Investigator Timothy Riker from Brown University. The study team also includes four Deaf Community Advisors. Because the research team includes five Deaf members, American Sign Language is the primary language used while working together. The first research brief for the Deaf ACCESS project at UMass Medical School related to Phase 1: Community Forums is "Deaf ACCESS Research Brief 1" available in ASL at https://youtu.be/qmrdsIpGbeQ. A Spanish translation of this publication is available is also available for download.