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dc.contributor.authorDuBois, James M.
dc.contributor.authorBeskow, Laura
dc.contributor.authorCampbell, Jean
dc.contributor.authorDugosh, Karen
dc.contributor.authorFestinger, David
dc.contributor.authorHartz, Sarah
dc.contributor.authorJames, Rosalina
dc.contributor.authorLidz, Charles W.
dc.date2022-08-11T08:10:28.000
dc.date.accessioned2022-08-23T17:10:36Z
dc.date.available2022-08-23T17:10:36Z
dc.date.issued2012-12-01
dc.date.submitted2013-03-28
dc.identifier.citationAm J Public Health. 2012 Dec;102(12):2220-5. doi: 10.2105/AJPH.2012.300757. <a href="http://dx.doi.org/10.2105/AJPH.2012.300757" target="_blank">Link to article on publisher's site</a>
dc.identifier.issn0090-0036 (Linking)
dc.identifier.doi10.2105/AJPH.2012.300757
dc.identifier.pmid23078487
dc.identifier.urihttp://hdl.handle.net/20.500.14038/46084
dc.description.abstractA diverse panel convened in June 2011 to explore a dilemma in human research: some traits may make individuals or communities particularly vulnerable to a variety of harms in research; however, well-intended efforts to protect these vulnerable individuals and communities from harm may actually generate a series of new harms. We have presented a consensus statement forged by the panel through discussion during a 2-day meeting and the article-writing process. We have identified practical problems that sometimes arise in connection with providing additional safeguards for groups labeled as vulnerable and offered recommendations on how we might better balance concerns for protection with concerns for justice and participant autonomy.
dc.language.isoen_US
dc.relation<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&list_uids=23078487&dopt=Abstract">Link to Article in PubMed</a>
dc.relation.urlhttp://dx.doi.org/10.2105/AJPH.2012.300757
dc.subjectGovernment Regulation
dc.subjectHuman Experimentation
dc.subjectHumans
dc.subjectInformed Consent
dc.subjectRisk Assessment
dc.subjectUnited States
dc.subject*Vulnerable Populations
dc.subjectBioethics and Medical Ethics
dc.subjectHealth Services Research
dc.subjectMental and Social Health
dc.subjectPsychiatry
dc.subjectPsychiatry and Psychology
dc.subjectPublic Health
dc.titleRestoring balance: a consensus statement on the protection of vulnerable research participants
dc.typeJournal Article
dc.source.journaltitleAmerican journal of public health
dc.source.volume102
dc.source.issue12
dc.identifier.legacycoverpagehttps://escholarship.umassmed.edu/psych_pp/622
dc.identifier.contextkey3968640
html.description.abstract<p>A diverse panel convened in June 2011 to explore a dilemma in human research: some traits may make individuals or communities particularly vulnerable to a variety of harms in research; however, well-intended efforts to protect these vulnerable individuals and communities from harm may actually generate a series of new harms.</p> <p>We have presented a consensus statement forged by the panel through discussion during a 2-day meeting and the article-writing process. We have identified practical problems that sometimes arise in connection with providing additional safeguards for groups labeled as vulnerable and offered recommendations on how we might better balance concerns for protection with concerns for justice and participant autonomy.</p>
dc.identifier.submissionpathpsych_pp/622
dc.contributor.departmentDepartment of Psychiatry
dc.source.pages2220-5


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